No longer told I’m young
Not told that it’s my weight
Not told that it’s my mental health
She acknowledges my miserable state
Giving so many vials of blood
I hope to find a cure
Or at least some sort of treatment
For the hell that I endure
Waiting waiting waiting
For the next appointment date
Anxious for a diagnosis
To learn about my fate
The doctor could not tell me
What she thinks is wrong
She started me on medicine anyway
My heart sang a joyous song
More tests need done for a diagnosis
But that’s not the most important part
Being given something to make me feel better…
I’ve waited so long to start.
My whole life has been pain
And suffering and woe
I never thought I’d be taken seriously
And misery is all I’d know
But now I have hope
To be free from this strife
To take my freedom for myself
To be able to have a life
My poetry is hella shitty, but I wanted to post this anyway because I’m really happy that my new rheumatologist is taking me seriously and I need everyone to know lol. I’m finally getting treatment for how shitty I feel after trying to get taken seriously for 20 goddamn years. Hoping the treatment works. :)
It’s a perfectly fine poem, and I hope you get the answers you seek.
Not taking people seriously is one of the most damaging things we do to each other.
Aw thank you. I had to drive 2 hours to see this new doctor and it was totally worth it. I exhausted all of my options that were closer over the years.
It took my mother more than 20 years before she found a doctor who took her seriously and diagnosed her as having a hyperactive thyroid, then another 25 years before one went over her extensive list of meds one by one to determine she had a one in a million allergy to cortisone that was causing mild organ failure.
Doctors don’t listen well, especially to women. It’s getting better, but only slowly.
Thanks for sharing that.
If you try editing the post to make the formatting work, add double spaces at the end of each line before pressing enter, it should make the line break work as expected.
Does it look any better now?
That’s better, but still not what I think you were going for:
No longer told I’m young
Not told that it’s my weight
Not told that it’s my mental health
She acknowledges my miserable stateView source on this (the button between downvote and reply, the page with top right corner folded in) comment. Observe that at the end of each line there is a double-space, and then an enter. The double space at the end of a line before pressing return is how to format for line breaks as you would expect in a standard text editor like ms word.
Hope you get an answer you can use. If you’re in the HLA-B27 group, know that there are community organized help forums out there and let me know if you want a link or two :)
Idk if I’m in that group or not. I know that the next tests I am getting are to see if I have lupus and/or some other autoimmune disease.
