Hello disabled comrades! Sorry the mega is late again. I hope we’re all weathering the COVID surge as best as we can.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
I’ve spoken on here before about how doctors and pharmacists are trying to stop me accessing my meds. I had one doctor try to stop prescribing me a med that was prescribed by a consultant at the hospital - because that med is “too expensive” at £2 per pill. I had to fight to keep receiving it. Then when the neurologist prescribed me another pill, the pharmacist complained about the cost (£12 per pill) and the GP’s surgery will only prescribe me 8 a month because of the cost, instead of the 30 a month the neurologist ordered. Then they tried to stop my topiramate because it can cause birth defects and I won’t take contraception (check out my username, I clearly don’t need contraception). The latest one happened today. As a side effect of my cancer treatment I have developed terrible eczema. It’s so bad that it gets terribly infected to the point that I have been admitted to hospital with these infections countless times. I sometimes wake up with my skin fused to my bedsheets with dried blood. I’m supposed to get 2 bottles of eczema cream a month. That’s barely enough as it is. Now they’ve cut it down to one a month. No medical reason at all. It’s just it will save the country £20 a month. Stupid, short sighted fake saving that will end up costing more when I have to spend more time in hospital. I hate this shitty world. Everything is always difficult, it’s always a never ending battle to get the absolute basics.