Hi everyone! That’s right, it’s time for another c/disabled megathread.
Update on the meds: they work! Quite well, actually. I feel like I’m finally functioning at a reasonable level, like I was not only getting stuff done, but I’m now able to actually effectively multitask (as much as one can lol). I’m quite happy with how it’s working, and I might not even need an SSRI at this point. If I’m getting anxiety from the meds, I’m not feeling it, because they actually reduced the amount of anxiety I have to deal with. I don’t know how (thinking ADHD-induced anxiety), but yeah, I’m a lot better than I was just last week. Quite happy for that, might actually be able to manage the end of the semester without crashing and burning this time around.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
One pattern some specialists see in long covid and ME/CFS is that it’s often seen in people who tend to overwork themselves and ignore signals of their body telling them to rest. But I wonder if there are actually that many people who don’t do this? Because or whole culture and economical system is built to get people to work as much as possible.
Tired of “living” like this for all these years. My body and brain just gets worse everyday.
A lot of my parents favorite stories about me are just me being very clearly autistic. hahahaha isn’t it so funny that you got overstimulated and had a meltdown your third Christmas?
No it just makes me sad, it makes me sad how many signs I showed and you still did nothing to help me. They’ve even told me how “lucky” they felt to have our pediatrician, because “a lot of other doctors would have diagnosed you”.
idek how this shit keeps coming up in conversation so often but I hate it. Wasn’t even the only example of my very obvious autism that got brought up over dinner.
“our pediatrician was great. sure they didnt give you access to the help you needed, but they didn’t make us feel uncomfortable, and that’s the important thing”
fucking hate people like that, sorry you have to deal with it
(CW: vent)
So looks like RFK Jr. is plotting a genocide on autistic people. Fucking great.
This isn’t me being an “autism isn’t real” kind of guy, but maybe I’m not the one with the problem. My symptoms can easily be cured by giving me a job and letting me participate in society.
Arguably, they’re not the pinnacle of neither intelligence nor sanity themselves. fascists are practically the poster child for both sadism and narcissism. Even if it’s not a mental disorder, porky’s cartoon character level of greed is pure weak-mindedness.
But sure, I’m the problem because of my “bad vibes” disease.
ye
omg right, like if i was given a job i’d have no issues performing it. the times where i got a job that wasn’t literal hell i was always one of the best employees according to my boss. but no, you must go through the ableism olympics before you may have a job, tough shit.
im trying to process kind of a lot of trauma right now that relates to an abusive ex. it’s like a domino effect where i touch one thing and need to process 50 other things in turn
idk im tired
Sounds exhausting, wishing you a good night’s rest and healing
One of my fellow students asked the professor about using ChatGPT for the exams. Apparently it’s going to be allowed from next semester on. I hate everything. Especially since he framed it as a good way to do accessibility.
You see the logic is that if you’re autistic or have social anxiety chatGPT can prepare your presentation for you.
I don’t think my autistic brain can process this weird bastardization of accessibility in the classroom.
Obviously you need chatGPT to explain it to you
but
but the hard part of that is the presentation part
i can still write out my presentation i just have a hard time presenting it
doesnt it make more sense to let people present using tts
I’m gonna be real, I think they just sprinkled a little inclusively language on shit they wanted to do.
Edit: But since you ask. They do not give any extra time for tts or accomodations if you’re in an exam where you’re not allowed electronics and if you need to sign you need to bring your own interpreter (Although they may foot the bill depending on the mood of the student support that day)
ai people seem to love doing this, but they always miss where ai is actually good for accessibility, bc those things dont make money ig
I think ai fans will just say whatever fits the current crowd.
So, they’re making a list of Autistic people in the US, for ‘tracking and research’.
sigh :c
good thing we werent planning on getting diagnosed? >~< /j
in all seriousness aaaaaaaaaaaa :c
I wish I could hug ya’ll and tell you it’ll be okay. The net on their so-called ‘undesirables’ is widening, but my hope is that it’ll bring us closer together, and ideally make more people care about what has already been happening. One can hope.
i do not like night classes, my sleep schedule is so messed up because i can’t sleep until like 6am because of the anxiety/performance from them
Got prescribed ADHD meds (will get delivered tomorrow), gonna receive help finally getting my prescribed CPAP (I kinda forgot about it) on Wednesday, and uh consulting about a surgery (not bottom surgery, bariatric), honestly I guess I’m moving forward kinda/cautiously optimistic
Awesome news!
Yay!!!
Easter once again reminding me how there’s no hate like Christian ‘love’
Hope everyone got through the weekend okay
Christians are so mean. What did they do this time?
Just the usual bs you’d find in most religious folk’s homes, nothing worth repeating. It leaves me grossed out how hypocritical they are, though. Makes me want to spread love and comradery even more to counteract it, ya know?
I just talked with my friend yesterday about her religious trauma with her born-again parents and i can’t decide if i want to smash their faces or the focus-on-the-family fucker whose instructions they were following more. Smash smash smash smash
Smashing’s good. I’ll join you
I remember when I was a carer for the elderly there was this one devout Christian woman whose granddaughter married a trans woman. This elderly woman never stopped insulting the pair of them for it. And multiple of the old people went to church, acted all holy and then were extremely racist and homophobic the rest of the time.
Sounds about right, good grief. I’m the type to talk back to people like that, so I’m not usually the target anymore. I’ll start windmilling a mfker for talking about others in front of me. It’s the passive aggressive stuff that gets mumbled and added into conversations that got me this time. Subtle hatred is a lot more difficult to address since it’s layered.
I once had a black girl working as a carer with me and the elderly called her awful names and once she got so angry about it she threw a glass of orange juice over one old woman. The girl got fired.
It’s so unfair, the elderly just get away with it because they’re supposedly confused.
That’s so fucked up. Endless OJ on that woman in hell if it exists… Honestly that job sounds pretty awful just for dealing with the people alone.
It was difficult and could be miserable… but nowhere near as miserable as being unemployed and fighting endless benefit claims.
I hope you got out alright
I did, ty
just over a month till summer damn time sure flies when you’re dissociating
Mood tbh, also I love your username
great minds
i should probably consider talking about job stuff at all a massive trigger for me. even if im just giving advice to a comrade it causes me to spiral, what the heck
Right there with you comrade
Ooh it’s not just me? Thank God, let me in there
My school has just placed a highly punitive zero tolerance policy on attendance. My ADHD ass is looking at getting kicked out for being about three minutes late four times this month. I am going in to talk to them about how I am pretty sure ADA reasonable accommodations include letting me be <5 minutes late a few times without getting kicked out. This is gonna suck. Since I don’t think the people who would invent this policy are people who are reasonable to work with.
Are you in high school or college? There’s definitely an office to talk to in college.
Community college level kinda. It is city trade school program. So it is government and the assumption would be it is college level as any other program of this type would be at a community college.
Attendance taking post-high school is such fuckery. It’s your money you’re wasting if you don’t go to class. And it’s indicative of a shitty teacher if people don’t show up and still pass. Being late? Who gives a shit?
(You shouldn’t skip class but things happen during university).
The policy is if you are late you are sent home. If you miss enough class you are kicked out if the unit. This is upsetting to me as I am not very late. I am changing adhd meds right now so I am having a rather severe difficulty in being perfectly one time. I am getting am A in the class.
I have no idea who you’d need to talk to since it sounds like a smaller program. But generally post high school level you can get more accommodations but you need to reach out and keep contacting people.
I have a meeting with the program director about the invoking ADA right to get scheduling flexibility. I am just not optimistic about how it will go.
The important thing is to not take no for an answer. Keep pushing. You don’t need to be confrontational, but persistence works.
<3
Fuck basketball for having those constantly flashing lights. Especially when there’s three giant sceeens of it in a restaraunt. Death to the NBA.
I also hate how all media now tries to move as much as possible nowadays, can’t enjoy treats without feeling nauseated
I feel a bit like a fraud/imposter posting here despite having Schizophrenia (since im kinda highly functional most of the time). The meds really do work for me as long as the dosage is correct. Lifes good for me atm. There are challenges for sure but compared to many im doing pretty dang good.
Glad to hear things are going well for you